Friday, June 7, 2013

a very special mermaid


Once upon a time a little girl was born to excited and newly expectant parents. They named her Sophie and for three months she was a perfectly normal baby. But then one day she had a seizure and another and another. Fast forward many years and hundreds of seizures despite numerous medications, diets, etc. Eventually Sophie was diagnosed with intractable epilepsy and she continues to have uncontrolled seizures to this day...

Love is central to this story and her parents loved her as parents do. Along came two brothers and they shared a life with Sophie and loved her as well. Sophie has grown up to become a beautiful young lady. I "met" Sophie and her family via Elizabeths' blog- a moon, worn as if it had been a shell and am not exaggerating when I say she has shaped who I want to be, as a clinician, as a doctor, as a person.

I have followed along over the past several years and I have learned so much about epilepsy and family and love from Elizabeth and her blog community. As a medical student I once left a comment and she turned it into a post where I received numerous pieces of advice and encouragement. I had long ago decided to enter the field of Child Neurology but if I needed another reason than Sophie is it.

I am posting this here because I think this is the best possible cause and because I consider Sophie and Elizabeth my blog family. Donate if you have something to spare or simply read the comments, look at the pictures and feel the love.

To read about a tradition of love-
http://elizabethaquino.blogspot.com/2013/06/the-long-distance-casserole-brigade.html

To donate, comment or see pics-
http://www.youcaring.com/other/a-bicycle-built-for-two-elizabeth-aquino-and-sophie-/60783